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Fascinating

Regality's picture

Fascinating (post #57136)

in

I read an article about this in the paper today:  http://www.epilepsy.com/epilepsy/treatment_ketogenic_diet

 


“For me, patriotism is the love of one’s country, while nationalism is the hatred of other peoples.”–Dmitri Likhachev


http://regality3.livejournal.com/



chiffonade's picture

(post #57136, reply #1 of 8)

Wow - makes me think of Lorenzo's Oil. 

"Sandra Lee is the Culinary Anti-Christ and I am the Anti-Sandra Lee.  The precious moments you may take to measure a level cup of flour are NOT wasted time!"


Chiffonade

*You're a REAL person, eat REAL food."

Chiffonade

Regality's picture

(post #57136, reply #2 of 8)

It does, doesn't it?--with the exception that some insurers (at least mine, Kaiser) are actually paying for it. 

 


“For me, patriotism is the love of one’s country, while nationalism is the hatred of other peoples.”–Dmitri Likhachev


http://regality3.livejournal.com/



cookgreen's picture

(post #57136, reply #3 of 8)

I loved that movie. When I was teaching our long distance teacher for Biology had my students watch it. I've often wondered what happened to Lorenzo?

KentD's picture

(post #57136, reply #4 of 8)

(You can find almost any information in the world with either Google or Wikipedia.)

From Wikipedia:
"Lorenzo Odone is still alive, having lived far longer than his doctors predicted. He celebrated his 29th birthday on May 29, 2007, and is still living in Virginia with his father. He can no longer see, speak, or move on his own, but can communicate by wiggling his fingers and blinking his eyes. Lorenzo is not on any type of life support. He continues to be cared for by his friend Oumouri Hassane from the Comoros Islands."

"Shared pain is lessened, shared joy is increased." -Callahan, Spider Robinson
"Shared pain is lessened, shared joy is increased." -Callahan, Spider Robinson
cookgreen's picture

(post #57136, reply #5 of 8)

Thank you. That really is so nice to know! The story of their determination still impacts me, especially when I need it myself.

Yes, I'm well aware that SOME people can use a computer but let me assure you, not all. As I so often have to remind my sister.

Florida2's picture

(post #57136, reply #7 of 8)

If you go to www.myelin.org you will see the foundation his father set up to promote research on demylinating disorders and how to re-myelinate, of which Lorenzo's disease is a demylinating disease (as is my disease, Multiple SClerosis). There are several demyelinating diseases.


I think the website also accepts donations for their research. Lorenzo's parents were truly amazing people.

moxie's picture

(post #57136, reply #6 of 8)

I have a dear friend who has used this with her daughter with great success.  The little girl is to begin with severely disabled with CP, but also had routine and terrible seizures that no drugs could touch -- and they were keeping her from helpful things like water and horseback therapy because of the risk of a seizure during one of those activities.


At any rate, they moved to the ketogenic diet as a desperate last resort after specialist after specialist basically threw up their hands, and she has not had a seizure in months. She is off the diet now because of another health condition (type 1 diabetes, sigh, the angel cannot catch a break), but she has remained seizure free.


"I have always relied on the kindness of strangers." - Blanche Dubois

Regality's picture

(post #57136, reply #8 of 8)

I'm so glad that the treatment has helped your little friend.  It's too bad about the diabetes (complication from the treatment?), but even so, I'd think/hope that living with diabetes would be easier than coping with the seizures.

 


“For me, patriotism is the love of one’s country, while nationalism is the hatred of other peoples.”–Dmitri Likhachev


http://regality3.livejournal.com/